ALS Awareness Week 2020 in Second Life

The ALS Awareness Week stage and dance area, 2020

The 2020 Harvey Memorial Ensemble ALS Awareness Week is taking place between Sunday, February 23rd and Sunday, March 1st, 2020.

Dedicated to the memory of ALS victim and Second Life resident Harvey22 Albatros, the week focuses on music and art, with both live performers and DJs offering sets, and a number of SL artists offering pieces for auction, with all proceeds as well as donations during the week going to AISLA, the Associazone Italiana Sclerosi Laterale Amiotrofica.

Art by Cica Ghost (foreground) and Solkide Auer

Amyotrophic lateral sclerosis (ALS), sometimes also referred to as motor neurone disease (MND) or by the synonyms Lou Gehrig’s disease and Charcot disease, is a specific disorder that involves the death of neurons that control voluntary muscles.

For about 90-95% of all diagnosed cases, the precise cause of the disease is unknown; for the remaining 5-10% of diagnosed cases, it is inherited from the sufferer’s parents. There is no known cure, and symptoms generally first become apparent around the age of 60 (or 50 in inherited cases). The average survival from onset to death is three to four years. In Europe and the United States, the disease affects about 2 people per 100,000 per year.

ALS Awareness Week 2020 schedule board

The Harvey Memorial Ensemble in Second Life features a daily schedule of music running from 07:00 SLT through to 18:00 SLT, comprising a mix of live performances and DJ sessions lasting between one and three hours. A schedule board (seen above) is available at the event location.

In addition, there is a special art auction taking place throughout the event, featuring 3D pieces donated by Solkide Auer, Cica Ghost, Mistero Hifeng and Bryn Oh. Those wishing to keep up with the event outside of Second Life can do so via the event’s Facebook page or Discord server.

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