The 2021 Harvey Memorial Ensemble ALS Awareness Week is taking place between Sunday, February 21st and Sunday, February 28th, 2021.
Organised by members of Supporto Italiano, the Harvey Memorial week is dedicated to the memory of ALS victim and Second Life resident Harvey22 Albatros, and focuses on music, fun and raising funds, with all donations during the week going to AISLA, the Associazone Italiana Sclerosi Laterale Amiotrofica for research into, and treatment of, Amyotrophic lateral sclerosis (ALS).
Sometimes also referred to as motor neurone disease (MND) or by the synonyms Lou Gehrig’s disease and Charcot disease, ALS is a specific disorder that involves the death of neurons that control voluntary muscles. For about 90-95% of all diagnosed cases, the precise cause of the disease is unknown; for the remaining 5-10% of diagnosed cases, it is inherited from the sufferer’s parents. There is no known cure, and symptoms generally first become apparent around the age of 60 (or 50 in inherited cases). The average survival from onset to death is three to four years. In Europe and the United States, the disease affects about 2 people per 100,000 per year.
The Harvey Memorial Ensemble in Second Life features a daily schedule of music running from 07:00 SLT through to 18:00 SLT through the week up until Saturday, February 27th.
On Sunday, February 28th, the schedule of music runs from 07:00 SLT through to 17:00 SLT, after which there will be an After the Memorial event that will go on as long as people want. All of the music events are a mix of live performers and DJs, and a schedule board (seen above) is available at the event location.
Donations to AISLA can be made in three ways when at the event:
- By clicking the donations kiosks in front of the event stage.
- By purchasing one or more items of clothing from the vendors located to one side of the dance area.
- By clicking on the boards at the AISLA information tents in the event space -these will take you directly to AISLA’s donations web page where you can use credit / debit cards or a PayPal account to make a direct donation.
100% of L$ donations made to the in-world kiosks and vendors will be forwarded to AISLA a the conclusion of the event.
- Harvey Memorial Ensemble 2021 (Evolution, rated Adult)